Hair today, Gone tomorrow

I think my hair is starting to bail on me.  Over the last couple of months, when people in my life found out that I was going to have to receive chemotherapy, a lot of them focused on my hair.  I got a lot of “You might not lose your hair.  You know not everyone does.  My sister’s neighbor’s babysitter’s mom didn’t.”  You know, lots of hair loss worry.  At the time, I couldn’t really understand it.  I was straight up scared that I was dying, and at the very least, I was worried about the toll chemo was going to have on my entire body.  Hair loss seemed so trivial.

Well, I’m not as cool with it as I thought.  Last night, I was about to read a bedtime book to Penny, and I took my ponytail holder out so I could lay with her.  About 25 hairs came with it.  Yikes.  I went to throw them away and gave my hair another pass.  More.  And more.  Sad times.  But I turned around and read my sweet little girl a bedtime story and tucked her in.  I think that’s what it means to go through something like this with little ones.  Grieving later.  Worrying when they’re in bed.

To be honest, I’m not looking forward to being bald, but I’m more worried about losing my eyebrows and eyelashes.  Weird and pretty vain, I know, but I love my eyelashes!  However, I CANNOT wait to lose my leg hair.  Bring. It. On.

Hair!

I mean come on, tell me you’re not a little jealous of my hair.  And my family.  And our attire.

My hair loss plan is to use it to my advantage as best as I can.  I already had my aunt cut it a little shorter and with thick bangs just to see what it would look like.  The bangs look awful on me, but now I know.  Next up, a pixie cut?  I never really imagined cutting my hair that short, but what if it looks amazing?  Now I’ll know.  If not, don’t fret…I’ll be wigging it soon enough.

I broke up with diet coke and am turning into my mother. I don’t think they’re related though.

Chemo sucks, but it’s also pretty much my bff.  I kind of feel about chemo like I did about my mom when I was fourteen.  I want to slam my bedroom door in its face.  I want to blame everything that’s wrong in my life on it.  It’s totally not cool, and it definitely embarrasses me (Oh hey, adult acne!).  Buuuuut, I actually know that I can’t live without it.  It really does have my back, and I’m certainly glad it’s there.  Just, you know, don’t tell it that for another five or ten years.

You guys, I made it through my first treatment.  You don’t want to hear all of my moanings and groanings.  I’ll just tell you that it wasn’t as bad as I thought it might be.  (I’m actually pretty nervous to publish that last sentence since I have five more rounds and the effects of chemo are cumulative, but it’s true…for now.)  I was down for about a week with a couple of bad days and one day that had me very worried about what the next day might be like.  Now, two weeks later, I almost feel normal.  I’ll go again next Monday for another swift kick.

Can we talk about some lifestyle changes that I have (and am still trying) to make?  More specifically, my deodorant situation.  (I know you guys have always wanted to go down this road with me.)  You see, I have switched to an all natural, non-toxic deodorant because antiperspirants are as shady as my junior year prom date’s intentions.*  More specifically, the aluminum and other nasties in antiperspirants have been linked to cancer and alzheimer’s, among other things.  Here’s my dilemma: I stink.  As I was tucking Penny in the other night, she said, “Mom, you need to take a shower.  You stink!”

“I do?  What do I smell like?”

She scrunched up her nose, thought for a moment, and replied, “Like old crusty dirt.”

I laughed for a minute straight, but I mean, come on!  It’s one thing to have my three year-old think I stink, but I can’t live my life like this.  I’m way too pretty to stink.  (I hope you know I’m just kidding.  Kind of.)  And I can’t even slather on some pretty smelling lotion because those are toxic too.  I guess what I’m getting at is twofold.  1) Do any of you guys know of a non-toxic deodorant that won’t have my daughter heckling me at bedtime?  I’m using primal pit paste.  2) If you notice my stink, I am so, so, so sorry; I am currently trying to decide between living a long life and having friends.

It’s funny because, before all of this, I thought we were a pretty healthy household.  We ate our fruits and veggies and whole wheats and drank mostly water.  We played outside every day.  Ugh.  Other changes underway: juicing, much less meat and dairy, organic everything, non-toxic everything, not a single diet coke since my diagnosis.

I had another realization this week.  I guess I have been noticing this slowly,  but I am turning into my mother!  Gah.  With each slightly inappropriate joke I tell, I feel it.  Every time I laugh at my kids before correcting them, I know it.  She used to embarrass me so much, and, at a time, I thought that she didn’t have much self-awareness…but there I was…at a family event…sitting between my brother and my 82 year-old grandpa…talking about how I don’t have a second base anymore and joking that Josh just gets to go straight to third.  Oh man.  Who does that?  My mom.  And now me.  I miss her.

My cousins told me that I couldn’t start a blog and then not have time for it.  So there.  I hope my random brain dumps suffice for now.  You see, my daughters don’t care if I have cancer or if I’m down because of chemo.  They still demand that I get my mom on.  I’m off to make dinner now.

 

*Just kidding, Jeff.  You were and have always been nothing but a gentleman.

Let me tell you a story about my best friend.

It’s day five. I was warned that days 5, 6, 7, and 8 would be my worst. I can only say *with fingers crossed* that I am still okay. Tired, achy, unsettled but mostly functional. Still braced. Since I don’t have much news to report and I’m pretty stationary, I thought I’d tell you a funny story that happened in the middle of an incredibly emotional, overwhelming day.

It was a couple of days after my diagnosis before I had my first official cancer appointment.  My husband had already taken off a few days from work.  He was even home the day the doctor called me with the results of my biopsy, which I thought was crazypants because everything was going to be just fine, Josh, thankyouverymuch.  Yeah, I’m glad he was there.  I basically could take no more words from my lovely Ob/Gyn and threw the phone at him, or maybe the wall.  All this to say, we decided that he needed to go back to work and that (one of) my oldest friends Lori would accompany me to meet my surgeon.

The details on how long we’ve actually known each other are shady.  We grew up on opposites sides of an adjoining alley, and I think we’ve been friends since we were four or five-years-old (along with our Christen, who I just can’t fail to mention).  Let me tell you about Lori though.  Lori is very shy.  She is also smart and funny and caring.  The girl has been there for me.  There were bubbles baths (at appropriate ages!) where we washed each other’s backs and tried to guess what words were were spelling on the other’s back.  We, together, struggled to find ourselves in high school.  Sometimes together, sometimes not.  When Taylor Hanson left me brokenhearted by marrying a fan (not me!) at 19, she was there.  I ran to her house in my pajamas the morning after my mom died.

Loriandme

 

I can’t tell you the reality that hit me when we walked in to Barnes, and I saw those huge letters, “Siteman Cancer Center.”  Yes, I am a nurse.  No, I did not prepare for this appointment.  My last few days were full of fear and worry for my daughters.  I couldn’t handle statistics or, really, any other additional information beyond what diagnosis I had already been given.  As we entered and took in my new reality, my friend put her hand on my shoulder.

I can barely remember how my appointment began.  A flurry of words that I absolutely wasn’t ready for.  “Estrogen receptors….FISH test….Grade 2….40% growth rate…two tumors…”  Dudes, breast cancer is not breast cancer is not breast cancer.  As a cardiac nurse, I really didn’t know the scope.  Dr. G. then said, “Well, it’s not the best profile I’ve ever seen, but it’s not the worst,” and excused himself for a moment to take another look at my scans or whatever.

At this point, I was on my way out.  I looked at Lori.

“I think I might pass out.”

I slid out of my chair onto the floor.

“I’m just going to sit down here.  I think I’m going to pass out.”

Lori is often very quiet, and it had been her job to “take notes” for me.  She looked just as bewildered.  On top of that, she knew I was serious.  She had seen me pass out on the first day of third grade when Mrs. Swift announced that I would be line leader.  So. much. pressure.

Miraculously there was a knock, an open door, and a nurse.  She didn’t looked the least bit fazed.

“Umm,” I said straightening up.  “Is there any way I can get some water?”

I got back up.  Dr. G. came back in.  He examined me, and we talked some more.  His serious demeanor scared the bejeezus out of me.  “Hey there doc, can I get a little smile?  An encouraging nod?  I mean, we did just get to second base.  Not your style?  Okay, then.  I guess you’ll just bill me?”  He set me up with a consultation with a plastic surgeon for that afternoon to discuss my options for reconstruction, and off we went.

Although these offices were in the same hospital building, the vibe couldn’t have been more different.  Or maybe it was just Lori and me looking to get rid of some of the morning’s negative energy.  We got settled into our room with a video.  A video all about how to build brand new boobs.  There are more ways than I knew.

Dr. T, the plastic surgeon, entered the room like he was the answer.  I don’t know if it was an immediate feeling or if, over the course of our meeting, Dr. T sensed the level of commitment Lori and I have for each other, but at first he spoke to me about my options.  Then, it all kind of blended together, and at some point, I got the distinct feeling that he was speaking to “us” about “our” decisions regarding my boobs.  He made sure to look Lori in the eye and was very considerate of her feelings too.  I can’t tell you how much I loved and needed that to happen.

“If I do the implants, I was thinking about going bigger since I have the chance.  Like double F’s?”

“Errr….umm….I’m not sure…”

“I’m just kidding.”

“Yeah, you’re a small girl.  I’m not sure that would fit.”

While speaking of another reconstruction option that involves taking fat from your belly and making breasts out of it, Dr T says, “You are a small girl.  I’m not sure I can build you back up all the way.  Stand up and let me see.”

“I mean, I have some if she needs to borrow,” says Lori so, so very quietly.

I smile and oblige and flash my second stranger for the day.  He grabs my belly.

“Oh yeah, I think I can make this work!”

Oh, well, thanks?  Just what I wanted to hear?  I just had a baby eight months ago!  What do you want from me?

He moves up.  “Has this right one always been a little bigger than the left one?”

“Oh, uh…well.  I’ve been breastfeeding for the last eight months, and that one works a little better.”

“Oh, I see.  Okay.”

I covered back up, and that was basically that.

And I needed that.  My sweet lesbian lover and I laughed and lunched and fretted until my breast MRI appointment at 7pm.  There is almost no lonelier place than inside an MRI (or CT or bone scan, etc.), where you feel like it’s you vs. your body and that machine.  It’s a total loss of control.  My mind filled with my daughters and God.  It made me realize that I never did have control.  None of us do, really.  I can only control my reactions, and not always can I do that.  I CAN love now.  And I can laugh for days when my plastic surgeon thinks my best friend is my life partner.  Hey, she is a catch!

Let’s pretend we’ve already shaken hands and said our formal introductions.

You know…because my immune system is heading to the down low, and I don’t really know how to officially start a blog.  I’m actually going to pretend that I’m here alone because I probably am.

So yesterday was my first chemo session of six.  After a night of calmly watching a movie with my husband, I promptly freaked out as the credits began rolling.  I got dramatic.  He suggested a walk, which I thought was nuts because who takes a walk at 10 pm?  Oh yeah, people who don’t have kids, and our kids were at Nana’s.  Party time!  (As parents of two small children, a night walk counts as a party.)  It helped.

The next morning, I put on my make-up and earrings because in all of the good cancer movies, there are so many friends to be made around the chemotherapy bonfire.  (That didn’t happen.  I was the youngest person there, for sure.  And I didn’t get the feeling anybody really wanted to try my new eco nail polish.)  Right after my blood work and doctor appointment but right before entering the infusion room, I did find myself headed toward the bathroom, contemplating making a run for the exit, never to return.  I ultimately decided that living was my goal.  I know, so boring.

To be honest, it was all really uneventful.  At first my emotions were unstable (re: holding back the tears to a couple of good laughs with my husband).  Once things got going, it all leveled out and was, actually, pretty boring.  I even managed a cat nap.  Then, like the big spenders we are, we rolled into Red Lobster, where I fervently hoped that I wouldn’t ruin cheddar biscuits for myself forever.  Because that would be TRAGIC.  Spoiler alert, I didn’t.

It’s now day 2, and I feel 90%.  A smidge nauseous and a touch weak.  My fun days are to come later in the week.  It’s kind of like bracing for a punch.  Although I’ve never really been in a fight (brothers and little cousins that I punched in the eye don’t count).  I did show up at a girl’s house once with the plan of punching her right in the face for “stealing” my boyfriend, but we just ended up sitting on her couch talking it out.  I liked her so much better when I left.  So yeah, I’m not even sure how to brace for a punch.